Wheelchair Vista on the lasting effects of being doubted Many of us with long term conditions struggle to accept that we can no longer live life as we used to. It took me almost ten years. I carried on working for longer than I should. A resident at the care home I managed said; “It’s […]
Read MoreWhat do you call a researcher with learning disabilities? Most people call them a ‘co-researcher’. We think that’s OK as long everyone doing the research is called a co-researcher. But if you have ‘the researcher’ working with ‘the co-researcher’, it’s like saying only one of them is a real researcher. We often hear people talking […]
Read MoreThe Chronic Illness Inclusion Project ran two extended online focus groups, each running over an eight-week period, where people could come together and explore issues around chronic illness and disability. The online aspect of our research wasn’t for reasons of cost or convenience, it was fundamental to our aim of reaching an invisible housebound population. […]
Read MoreLaunching “energy impairment” From now on, “Energy Limiting Chronic Illness” is the term we’ll be using to better represent you and voice your concerns. From all our focus groups and survey responses, the concept of energy impairment seems to best convey what people with chronic illness want policy makers and society in general to understand […]
Read MoreThe ‘ImaYDit’ project has produced the following Vlog providing a greater insight into the transition from childhood to adulthood for disabled young people. It is coproduced with up 10 young disabled co -researchers who are engaging with up to 50 young disabled participants to explore the opportunities for moving forward into independent lives. For further information about the project please […]
Read MoreNorthern Ireland section: ‘‘Is It Me?’ How do attitudes in the adult social care system impact on the independent living choices of disabled people’. This blog is an update on the exciting project regarding attitudes towards disabled people in the context of adult social care that we are currently conducting. The project is funded by […]
Read MoreSo far we have made great progress with our DRILL project, which focuses on Implementing Article 13 of the UNCRPD: Enhancing Deaf People’s Communication Access to Justice in Northern Ireland. We have been working in partnership with Queens University (Belfast), Syracuse University (New York) and Rowan University (New Jersey). As I mentioned in my previous […]
Read MoreMost people know that engaging in physical activity is not only important for our physical health, but also for our mental wellbeing. Much of the existing research focuses on the impact of physical activity on depression, with multiple studies finding that physical activity is associated with a reduction in depressive symptoms. The Royal College of Psychiatrists […]
Read MoreHealth and social care services are failing disabled parents and their children, a report published today suggests. Disabled parents told the report’s authors that health and adult social care professionals assessing their needs often ignore the parenting implications of their impairment and fail to communicate with their counterparts in children’s services. Meanwhile, children’s social care […]
Read MoreMargaret Follon, Chair of the Project Advisory Group: I was delighted to be asked to chair the Advisory Group for the Match Me research project. It has been a real pleasure to meet both the research group from Stirling University and the other members of the group who have come from a variety of backgrounds. […]
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